I always tell myself that I’ll post at least one piece a month but of course life has other plans. In between keeping up with the house, the therapies, and two toddlers; one can only hope for time for basic care let alone extras am I right? Haha
Abel hasn’t had consistent early intervention since the week before his birthday (2/13) and I’m trying pretty hard not to lose it these days. His wonderful Speech therapist, who came to Florida after she was displaced by the hurricane that hit Puerto Rico, decided to go back home to be with her family. The agency whom we receive his speech therapy from, has yet to provide us with a replacement therapist and doesn’t seem like they’ll be doing so for some time. The cherry on top? Abels reauthorization for treatment came and went with them putting a hold on his services. What does this mean? My sweet boy, who has been making much improvement with the consistency of his weekly visits, is waiting around. The whip creamed topping (lol) we’re switching him over to a specialty insurance that a better fit overall which has given yet another excuse for the process to move along at a snails pace.
I’m trying so hard to keep positive and pray of course. I already work with the kids on activities on my own regardless of what happens with early intervention. I guess what I’m saying is that it’s difficult being “Optimistic Kassey” when my son is missing out due to someone else not being on their A game. I will say that I’m thankful to our occupational therapist who made sure to have our new sensory diet done up beforehand and has been pretty great thus far in reassuring me. Our last speech therapist has even given me loads of advice and is just a text or call away.
How we are keeping up with the loss of therapies
In an attempt to keep things going for Abel (and keep some kind of normalcy for his sake) I’ve taken to DIYing therapy sessions myself each day. I always enjoy some one on one learning time with Aiven and Abel so this is the biggest upside to everything going on.
For Abel’s physical therapy we work on balance and body awareness. We’ve done so using our handy dandy stability disc which is just a fancy label for an inflatable cushion that he stands on to balance and work on some strength. We also use a balance (yoga) ball, a mini trampoline that his OT left here for us, and some ankle weights. we practice going up and down the stairs and are working on walking facing forward instead of looking back for most of the walk. its all slow progress but progress nonetheless.
I’m a firm believer in a child learning in play and occupational therapy at this age is just that. Abel practices discriminating different shapes and where they go, experiencing different art mediums like paint/chalk/clay/crayons, he works on following simple instructions, and even gets some good old sensory stimulation with his Z-Vibe and body brush. We’ve incorporated sign language into me already explaining the steps to our many activities. The items that have been most influential have been his shape sorter, his flip race car track, the learn with me pig e bank, his building blocks, and LOTS of arts and craft supplies. Despite being hesitant he really is a trooper and goes along with even the newest of activities.
This one has to be by far the therapy that’s given me a run for my money. When we lost our SLP we were working on our PECS system and just getting into our own rhythm of things and I really didn’t want to sabotage the progress we were already making. Do I continue making my own PECS cards? Stop the PECS altogether and just let things be? One thing was for sure, I wasn’t going to give up. After countless hours online (thanks pinterest) getting a feel for the many done up systems out there. I went with a mixture of sites to achieve a visual schedule that we could introduce while in wait. it shows our daily activities including our family outings to give Abel a sense of control and knowing what’s next. I took things a step further and have even made him color flash cards to further work on our colors. I’ve made mini food cards to even put a name to his favorite foods and snacks which will also play into his food therapy that we’ve thankfully kept going with his early interventionist.
The sites that I used were:
–If your interested in the toys/tools I’ve listed above I made an account with kit.com and although I cant figure the darn thing our I did manage to add them there. I’M always happy to give specifics on what we use and how we use them.
It has been far from easy and it feels like the last few months have been an absolute rollercoaster altogether but I’m really just glad that we do have a diagnosis that has given us so many answers on how to better care for Abel so that he can thrive and be the happy boy that he is. As long as he and Aivy are getting the love and care that they need it really is worth every bit of it.
Oh! a moment for the little victories shall we?
Can I just boast about what rock stars these kiddos are? This weekend we drove down to visit family and I cant remember either one crying even once! Just six months ago we couldn’t last thirty minutes in the car let alone a consistent three and a half hours of nothing to do but look at the cows and trees outside our window. Heck blame it on my ADHD, but I was more anxious than they were to stretch my legs and change it up. If that doesn’t validate how awesome these two are, I don’t know what does.
Strawberries make this house run like the smooth well oiled machine it surely isn’t haha. Weve finally made a break through with both Aiven and Abels eating habits and along with pretty much every other fruit in the produce section, strawberries have been our jam. They’ve gone through more cases of strawberries than I care to say but the nutrigraine era is finally past us! Next task is getting them to put down the pretzel rods haha.
Yes I’m rambling and yes I should probably be sleeping but midnight seems to be the time to get these things done when you’re days are as busy as mine. I’ll leave this here with good wishes to all and a promise to just keep chugging with more updates to come. As always, thanks for reading along.